News and Events
News and Events
Rare disease prevention, India
January 5, 2023
Rare disease prevention, India Share Post
Shoutout to all couples to prevent rare diseases
December 28, 2022
Shoutout to all couples to prevent rare diseases Share Post
Universal Health Coverage Day
December 12, 2022
Universal Health Coverage Day Share Post
Media Coverage
-
Man procuring 117 oxygen devices with German friends’ help
-
Thalassemia patients struggle with blood and lack of access to drugs during lockdown
-
COVID19 restrictions hit blood donations
-
Bangalore thalassemia patients fight for access to drugs
-
U turn on national rare diseases policy
-
Struggle with thalassemia
-
Flawed approach to national rare diseases policy 2017
-
Need for rare diseases drug development
-
Policy support for blood disorders
-
CHET helps draft India's first state rare diseases policy
-
A growing scourge of rare genetic diseases and why it matters for India